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| Kean Michael Meoli |
| My name is Erin Meoli and my son Kean Michael Meoli was born June 14, 2007 in Philadelphia with surgeries at CHOP. (We live in Kansas City, but thought the odds would be better somewhere higher in volume for these 3 procedures.) My husband Nick and I have an older son named Bennett who just turned 3 (HH). Kean's Norwood went really well and he was out of the hospital within a week and a half of surgery. However, once we were back home, within a week he was life-flighted to the children's hospital here for respiratory distress and fever. They searched for source of infection and finally realized he had mediastinitis (chest wound infection). We were immediately jetted back up to Philadelphia where they debrided the wound the following day. He went into ventricular fibrillation shortly after and suffered a stroke (that was diagnosed later) during his arrest. He had to have IV antibiotics for 4 weeks in the hospital and then 2 weeks of oral once we finally got back home. We returned back to CHOP 3 weeks later for a stent placement due to his atrial septal defect closing...no one knows why this happened. He then returned in November for his Glenn and was released 4 days later. We have been home since then, and Kean does very well. He has always been breast-fed, making us very fortunate to not ever have had to deal with a feeding tube. He is a great eater so far and weighs over 16 pounds now! An Occupational Therapist visits twice a week to help with the stroke issues, but so far he seems just a little behind developmentally with mild Paresthesia in his left arm/hand. He seems very happy and we try to cherish every day we have with him. |