PRIVACY STATEMENT
The Hope For Children With HLHS Group [GROUP] is committed to maintaining a web site that protects the individual’s right to privacy. We do not
require personal information from our visitors, nor do we collect any personally identifying information (name, email address, Social Security
number, or other unique identifier) unless you knowingly provide it. Likewise, we do not give, sell, or transfer any personal information to a third
party except as might be required by law.
Data Collection for Statistics
To aid in web site management, certain information is collected for statistical purposes. The Group's web host uses specialized software to create
summary statistics, which are used for such purposes as assessing what information is of most and least interest to our customers, and
determining technical design specifications
We collect only the following information about your visit:
The web browser you use to view pages, for example, Internet Explorer,
The pixel setting for your browser, for example, 800 x 600.
We use the information we collect to measure the number of visitors to the different sections of our web site, allowing us to make our web site
more useful and accessible to visitors. We do not store any personal identifiers.
Information Collected from E-mails and Forms
You may decide to send us personally identifying information through e-mail messages or through on-line forms. Electronic communication allows
us to collect information that will improve our web site for you, and we encourage it. We use personally-identifying information from consumers in
various ways to further our customer's protection and to provide better service. This may be to correct broken links that you have identified or
provide additional information that you have requested.
You may decide to sign our guestbook. Any information you enter into the guestbook is shown to anyone viewing it. Aside from that, this
information is not used by us in any other way. The guestbook service we use stores the IP address, so that if it is needed, that IP address can be
blocked from use of the guestbook. This information is not used by Hope For Children With HLHS, and to our knowledge, this information is not used
in any other manner by the guestbook provider.
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STANDARD DISCLAIMER
We will link to external sites that help us perform our mission - "Bringing together families and children living each day with the trials and triumphs
of Hypoplastic Left Heart Syndrome."
Links to external servers do not imply any endorsement of the opinions or ideas expressed therein, or guarantee the validity of the information
provided. Links to commercial sites are in no way an endorsement of any vendor's products or services.
Links will be provided to external servers that are managed in a professional manner (i.e., it is fully operational, is available most of the time, does
not serve inaccurate information or obscene graphics, etc.).
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USE OF OUR LOGO
Please note:
You are welcome to make a link to any of the Web pages the Group has published on the Internet. There is no need to request permission.
Not all the information on our site is in the public domain. Some images/graphics are for use of the Hope For Children With HLHS Group only. If you
would like to use our graphics, please request to do so by email to Shannon Tercheria at Shannon@hopeforhlhs.com.
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Comments? Questions? Please contact us.
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This website is intended to bring together families and children living with HLHS. We are not medical professionals, nor are we affiliated with any
medical professionals/ services. Advise may be given, member to member. This advice should NEVER take the place of advice that has been
given to you by your child's doctors, and should NEVER take the place of seeking advice from your child's doctors.
The information in this website or the on-line support group is not intended to diagnose, treat, cure or prevent any disease or illness. Again, the
Group is not medically trained. Our sources of information stem solely from caring for our own children with Hypoplastic Left Heart Syndrome.
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